Tuesday, August 18, 2020

Our First Ever Socially Distanced Vacation

 Just us, ourselves and we on a private property with private water access... swimming, watching wildlife, board-gaming, reading, experiencing Hurricane Isaias, catching some movies and documentaries, and enjoying long, lazy days.

Monday, August 17, 2020

The New School Schedule

We have worked very hard to put together a solid schedule with various professionals for our home schoolers this year and I think we have succeeded.


RM:

M/W/F: academic work at home with an educational assistant 8:00 to 11:20 beginning 8/17

T/TH: academic work at home with an intervention specialist 8:30 to 10:30 beginning 8/18

M/T/TH/F: medical ABA therapy at home/in the community with an RBT/BCBA 1:00 to 5:00 on-going


AM:

W/F: academic instruction (8 classes with 10 or fewer students each) at LOL 9:30 - 3:30 beginning 9/29

T/TH: academic intervention at a small center (class size 4 or less) 9:00 - 12:00 beginning 9/7


EM:

T/TH: academic intervention/ SLP at a small center (class size 4 or less) 9:00 - 12:00 beginning 9/7

T: 3:00 - 4:00 neuro-feedback ongoing

(We may add more services for her depending on how things go, but for some children less can be more sometimes.)

Tuesday, August 4, 2020

Why My Kids Are Home Schooled During The Pandemic

When Ohio's governor closed all schools in our state in the middle of March, our family felt - pandemic aside - strangely excited. It suddenly forced the opportunity to explore something we had often wondered about: how would we do with three children at home 24/7 and learning here?  We already had experience home schooling our oldest, so the task seemed less daunting to us than many others.

We did not use the virtual instruction that was offered by the district until the end of the 2019/20 academic year, but still had the support of the teachers and therapists for questions, resources and ideas.  How did it go?  It went great!

As we are nearing the new school year, our district is offering a full face to face option and a full virtual option.  Neither is viable for my children at this time, so we have decided to declare three home schoolers for 2020/21.  And here's why:

1) two of the children have pre-existing medical conditions placing them at higher risk for infection and higher risk for adverse outcomes if infected

2) one child cannot wear a mask for prolonged periods of time for medical reasons

3) one child cannot wear a mask for sensory reasons

4) one child is a hugger

5) one child has a lot of hand to mouth behaviors for sensory reasons

6) one child needs physical touch for safety

7) one child needs healthy touch for co-regulation and emotional well-being

8) two children made greater academic progress at home than at school

9) three children need close physical proximity to achieve joint attention

10) two children need hand over hand assistance for certain academic tasks

11) three children work better with flexible schedules and creative teaching methods

12) three children need frequent sensory and movement breaks

13) two children need intrusive assistance for proper distancing

14) zero children regressed in home school

Our X-factor is that during spring home school for three students, we had two adults at home at all times able to work on academics and meet any other needs.  We likely will not have this level of adult presence through June 2021, so therein lies our main concern and challenge.  In addition, we are actively brainstorming ways in which the new lead teacher (aka mama) can get alone time to rest and recharge as needed.

There's no one size fits all answer for the coming school year (if ever) and most families I know have struggled with the pressing decisions.  My hope is that everyone can find a peace and a way forward that works for them, for the time being, until we get to the other side of this pandemic with a greater appreciation for our good health, our advanced medical care systems, and all the other services we may have been taking for granted in our country for decades.

Monday, July 27, 2020

Picture Of The Saturday

The time you had to wash the family car to earn back privileges...

Monday, July 20, 2020

Illegal Change Of Placement

When Craig and I signed Emilia's new IEP into law in April 2019, we did not expect, based on the document itself, any significant changes for her in the 2019/20 school year.  However, the moment we stepped foot into the Open House in August 2019, we realized that an illegal change of placement had occurred.  It physically almost took my breath away to see Emilia's schedule and classroom and find out how and where she was expected to learn going forward.  I could barely speak and felt a tsunami of disbelief, anger, and shock well up inside of me.

In IEP speak and in a nutshell, a change in placement for a student means that the definition of what is the least restrictive and most appropriate learning environment has changed.  Change of placement is not necessarily about location - though it can be - but also about the specific curriculum, instruction and services received by the student.  A change in placement is decided upon by the IEP team, including the parents, and must be agreed upon... and disclosed for that matter.

Continuum Pyramid | Teaching strategies, Student services ...
Following the Open House, I spent a few weeks gathering data.  I made sure I had a detailed schedule from the school about how Emilia was spending her time, where, and with whom.  The minutes she was spending outside of the mainstream classroom had been tripled over what was outlined and agreed upon in her IEP, making for an unlawful change in placement and reporting category.  I also reached out to other district parents of children with special educational needs to gather more information about the specific classroom in which Emilia now largely spent her time.

On September 6, 2019,we had our first meeting with an education advocate who decided to take on Emilia's case.  She requested a complete academic record for Emilia to get started - it took a long time to assemble and the district was slow in responding to my request for certain documents, too.  While we built our case, Emilia had begun to regress academically, with life skills, and behaviorally.  She was also quickly turning from a student who liked going to school into one who begged to be allowed to stay home every single day.

Finally, after many weeks of trying to schedule the IEP meeting requested by us, it was set for January 6, 2020 - the first day back from Christmas break.  I was dreading the meeting and then, the night before, received an email from the advocate that she had been diagnosed with the flu and could not attend.  Rather than canceling, I decided to go to the meeting alone and plead Emilia's case.  For nearly three hours I tried to get the school to admit that they had illegally changed Emilia's placement and to rectify it, but some (though not all) team members insisted that no such thing had happened, that I did not understand the law, and that I did not understand Emilia's needs.  I left the meeting deflated, but not defeated.

After another consultation with the advocate, we requested a facilitated IEP meeting with an ODE  (Ohio Department of Education) mediator.  Basically, we were bringing in the big guns now because this alerted the state's Department of Education to potential illegal actions in our district.  Again, it took a while to get it on the schedule, but finally on March 6 it was time to battle.  I wish the term battle didn't have to apply, but by this point the district had broken all trust with us and treated us in a patronizing and infantilizing manner for months.

Between the amazing ODE mediator and the advocate, Craig and I didn't really have to say much in this meeting.  The district continued to deny they had done anything wrong until the mediator went to the whiteboard with the numbers, showing in minutes and percentages what had happened to Emilia's education... illegally.  And then boom, the room went quiet and with a nod of the head by the District Special Education Supervisor, the battle was won.  A huge weight fell off me in that moment and I was shaking so hard inside, holding back tears... but on the outside I looked calm and collected.

After a break for both parties to regroup, we spent the rest of the meeting devising a new schedule for Emilia to begin implementation the following week.  I knew this would be an immensely difficult, but important transition for her.  It hurt my heart that the district had created these challenging circumstances that Emilia would now have to overcome at great personal effort.

Then enter Covid-19... one week after that fateful IEP meeting, Ohio schools closed.  This step was a tremendous blessing for Emilia who had not wanted to go to school for months and who had just begun a trying transition back to the least restrictive educational environment.  Being at home for the last two months of the school year allowed Emilia to stabilize her mental health and to make real academic progress.

The school closure also meant that Emilia's regular annual IEP update would have to be completed virtually.  We continued to have the support of the advocate and the mediator through the process and created a new IEP that sets high expectations for Emilia, gives her more one on one instruction in core academic areas, and returns her to the mainstream classroom for the great majority of each school day.  We have an outstanding discussion yet with the district about compensatory education for the 215 hours of instruction in the general education curriculum Emilia was denied when her placement was changed unlawfully and without our consent.

We do not know yet what the 2020/21 school year will look like in our district, but we're hopeful that it will be a better year for Emilia than the previous school year.  It's possible that Emilia will be home schooled to reduce the risk of Covid infection since she does have a pre-existing medical condition.  If so, she will receive academic intervention and therapy services though a non-district professional provider.

While I wish we wouldn't have had to go through this painful experience, we learned a lot about Emilia as an individual and student, about our own strength as parents, and about the importance of getting the right help when needed.

Tuesday, July 14, 2020

Happy Together Forever Day

Nine years ago we took our beautiful boy through the blue gates of an orphanage in Yerevan into his family ever after.

Tuesday, July 7, 2020

Happy New Year - This & That

July 1 is a second New Year's Day in our house because Craig works with a fiscal schedule that ends on June 30 and begins again on July 1.  He's been working from home for nearly four months now and we've all very much enjoyed having him here with us.  Sadly, he did have to miss out on his annual New Year's tradition at work where he decorates the office and shares a treat with his team on July 1.  Craig is slated to go back to the office on July 20 on an every other week schedule and even the on weeks are just three or four days because Craig's regular schedule is 20-40% from home.

July 1 is also the official first day of the 20/21 school year in our state which means that home schoolers like Ella can begin counting their instruction hours toward the required amount.  So, our big girl started 6th grade - sigh - this week and she's already completed over 2% of the total hours.  We're focusing at the moment on math, social studies, PE, and health/safety.

School for Rex and Emilia is supposed to start on August 12. As of today, our district has not offered any information about what school will look like in 20/21, so we are waiting to decide how they will be educated in the coming months based on all options that will be available to them.  Both have pre-existing medical conditions that place them at high risk for infection with Covid-19.  Meanwhile, Emilia has been making excellent academic progress learning at home with me and Rex has been receiving his in-home therapy again which keeps him moving forward, too.

Independence Day was very low key for us because we are still socially distancing in order to protect our family.  It was a scorching hot day, so we spent much of it in the pool. We barbecued for dinner and ate on the patio - corn, tomato salad, watermelon, sausages and garden burgers.  At dusk, we were surprised with an amazing and long (about 90 mins) fireworks show that took place from the backyards of homes on our street and from neighborhoods all around us.  What a great way to end the holiday and thanks to those in our community who invested their money and effort to make it happen.