PSA: Iron Deficiency

We just experienced the results of undiagnosed, severe, long-term iron deficiency in a very scary scenario, so I want to mention some lesser known symptoms of iron deficiency here that may go unrecognized especially in individuals with complex support needs.  I am also adding details about how some of these symptoms were expressed in our case verbally or physically.

1) Whooshing in the ears: "My ears are humming."

2) Rapid heart beat: "My heart hurts."

3) Poor sleep: waking up multiple times per night and walking around

4) Poor growth

5) Restless legs: legs drumming on the mattress multiple times per night while asleep

6) Ulcers/cracks in the mouth: "I have sores in my mouth."

7) Sore tongue: moving tongue around the mouth vigorously

8) Brittle nails

9) (Increased) anxiety

10 (Increased) depression

11) (Increased) symptoms of ADHD

12) Itchy skin or rash: "All the clothes are itchy."

13) Poor temperature regulation: "I have a little fever."

We saw multiple specialists to address certain isolated symptoms, but until this week, there was no cohesive interpretation of what may have been underlying a slow physical and mental health deterioration, presenting itself in all 13 symptoms above over time.

In addition, if you take SSRI or SNRIs, please have your doctor do complete blood cell counts with some regularity and test for iron/ferritin levels etc. specifically as well.

Temps

Big Girl passed her BMV Knowledge Test today on first try and now has her temporary instruction permit identification card - well, the card is coming in the mail soon, so for now it's a print out.  She's ready to begin her driving classes with the help of Opportunities for Ohioans with Disabilities.  She studied hard and earned this next step toward independence.  We're proud of her.

British Fairy Cakes

Big Girl's group of closer friends includes several teens whose parent/s are first generation immigrants (Sweden, Colombia, UK, Pakistan) which has prompted an ongoing joke this winter in our family about pastries from other countries.

After a sleepover with her BFF last weekend Big Girl and her friend surprised me with British Fairy Cakes in response to the joke.  Such a sweet gesture of them and yum.

Pathological Demand Avoidance

As our children develop, sometimes we recognize that certain aspects of their individuality can be classified into a diagnosis which does not change who they are but gives us fresh approaches to parenting and teaching.  We recently realized that one of our children has Pathological Demand Avoidance.  You can google it if you want the scientific details, but said child's teacher found a great summary from a book by a writer that has PDA (Calendar Girl by Sally Cat).

IAC Results Sessions 595-598

 The following referrals were issued in IAC session 595 which was held on November 16, 2023:

1) US dossier from May 2016 referred a male child aged 1 year and 11 months with features in health status

2) Italian dossier from July 2017 referred a female child aged 8 years and 9 months with features in health status

3) Canadian dossier from December 2022 referred a female child aged 10 years and 7 months with features in health status and a family history

4) US dossier from November 2023 referred an identified waiting child

5) US dossier from November 2023 referred an identified waiting child

 The following referrals were issued in IAC session 596 which was held on November 23, 2023:

1) Canadian dossier from September 2015 referred a male child aged 1 year and 8 months with feature sin health status

2) Dutch dossier from September 2021 referred a female child aged 2 years and 9 months with features in health status and a family history

3) Italian dossier from February 2022 referred a male child aged 11 years and 6 months with features in health status

4) US dossier from October 2022 referred a male child aged 3 years and 8 months with features in health status and a family history

5) US dossier from November 2023 referred a brother and sister aged 8 years and 4 months and 7 years and 2 months with features in health status

6) US dossier from November 2023 referred an identified waiting child

7) US dossier from November 2023 referred an identified waiting child

 The following referrals were issued in IAC session 597 which was held on December 5, 2023:

1) French dossier from October 2020 referred a male child aged 2 years with features in health status

2) Italian dossier from February 2022 referred a male child aged 11 years and 11 months

3) Italian dossier from January 2023 referred sisters aged 5 years and 2 months and 8 years and 6 months with features in health status and a family history

4) Us dossier from March 2023 referred a female child aged 1 year and 8 months with features in health status

5) Italian dossier from April 2023 referred a sisters aged 10 years and 2 months and 9 years and 2 months with feature sin health status

6) US dossier referred an identified waiting child

 The following referrals were issued in IAC session 598 which was held on December 20, 2023:

1) Spanish dossier from July 2013 referred a male child aged 10 years

2) Italian dossier from September 2022 referred four siblings (three girls, one boy) aged 5 years and 9 months, 8 years and 11 months, 4 years and 6 months, 6 years and 9 months

3) Canadian dossier from June 2023 referred a brother and sister aged 6 years and 5 months and 5 years and 4 months with features in health status

4) US dossier from December 2023 referred an identified waiting child

5) US dossier from December 2023 referred sisters aged 11 years and 1 month and 13 years and 2 months

6) US dossier from December 2023 referred an identified waiting child

Richtfest

Growing up in Germany, I remember from my childhood the occasional Richtfest which is a celebration that takes place when the outer shell of a new structure has been erected.  Traditionally, this involves a gathering with food and drink that includes both those who commissioned the building and their family/friends and those who actually built the structure.  A crown of greenery, flowers and ribbons is raised into the rafters as well as a visual representation of gratitude and joy.

With the completion of our home addition framing on Friday, today we had our own abbreviated version of a Richtfest.  I made the crown and we hung it and we left breakfast treats for our work crew that was returning to finish up another aspect of the project today.  Then the five of us went into our new addition to write our wishes for the space onto the walls.  Middle Kiddo carried out a very liberal interpretation of Hillebille which traditionally is a rhythmic beating of hammers and axes by the craftsmen to drive out any negative energies and bad spirits from the new space. 

It'll be a while, but we're so excited for the things to come.

Never Say Never

When you have neurodivergent kids, there are some things that professionals will tell you your children will never do and others you are realistic about yourself in terms of your child's perceived ability to accomplish them or not.  And there are times where you accept it and make your peace with it and other times when you push and work against the predictions.

Middle Kiddo has strong communication about things that are important to him, but for years I have told people not to expect him to make small talk.  My usual example in such discussions has been, "He's never going to talk about the weather."

Well, last week Middle Kiddo was on a nature walk with his therapist and she mentioned the next day's forecasted snow. And sure enough, Middle Kiddo responded (and I am paraphrasing here), "I'm over the snow and cloudy days and ready for blue skies and heat."

So, it looks like I was wrong and I'm glad for it.  It's been a good reminder to never say never.